"Evelyn was diagnosed with a rare metabolic disorder called ADSL deficiency at age 2. She is now 5! There is no treatment or cure. You can learn more about ADSL deficiency at our patient advocacy page, @rarebirdsfoundation.

Evelyn’s medical team wouldn’t make any predictions on prognosis, but told us “Evelyn will lead the way”.  And she has!

Evelyn enjoys her Madsen, her furry siblings, her @theriseschoolofhouston community, music, movement, the playground, & adventures all around Houston. She enriches the life of anyone who takes the time to get to know her, & we are better people for knowing and loving her!"

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