MEET SOPHIE MAY 💕, a fighter!! “She is five years old and loves her new bike.  This is the only bike she has ever been able to ride due to her special needs and body control.  Her first day in th...

"Evelyn was diagnosed with a rare metabolic disorder called ADSL deficiency at age 2. She is now 5! There is no treatment or cure. You can learn more about ADSL deficiency at our patient advocacy p...

MEET ANNA 📚 "Anna is our sweet little girl with Down Syndrome and Autism. She is in elementary school and loves it. She loves all things Sesame Street and enjoys paging through her books. Her favor...

MEET JUNE 💞 “June is 5 and has Down syndrome, a chromosomal condition marked by a third copy of the 21st chromosome.  June is our middle child and has an older and younger brother. Some may think ...

MEET COLIN ☀️  “Colin is a ray of sunshine! He loves music, people, going for bike rides and being outside. He has a very rare genetic disorder called inverted deletion and duplication of 8p. We d...

MEET EMMETT (affectionately know as “EM”) #opinionated #bestkindofadventurous 💫🕺🏼“At two and a half months old we found out Emmett, our first born, was in liver failure. That day completely changed...

MEET this young entertainer and adventuring globetrotter, JUDE #tourguide 🗺️“Jude was born with a diagnosis of Down syndrome and was later diagnosed with Autism and Speech Apraxia as well. But Ju...

MEET JOJO ♥️ “Like every new parent, I had so many expectations for myself and my parent journey. And I had hopes for my kids, and that didn’t change when I received our Down Syndrome diagnosis. Wh...

MEET HUEY ✨ “Our sweet boy Huey is such a light in our lives. He’s in a battle with Tay Sachs disease which will take him from us in the near future. He’s taught us so much about love, living in t...